survival, hope, growth

1 out of 10 babies born are born with a rare disease. 72% of those rare diseases are genetic. Hudson is one of those kids. He was born in 2017. Fear, anxiety, anger, hopelessness, selfishness, and a feeling of being completely lost overcame Hudson’s parents. It all changed when they met their Miracle — Susan. Susan was a nurse practitioner at Children’s National in Washington, DC. She became Captain Sully for Hudson and his family.

Miracle of Hudson (MOH) is setup to become Captain Sully for every rare disease baby born in the future. Wrapping our arms around that baby and its family, MOH will introduce them to families who’ve already been through what they are now going through. MOH will introduce doctors, specialists, therapists, and other resources that will empower this baby to accomplish his/her best possible outcome. Hopelessness will be replace with hope. Fear with determination. Anxiety with understanding. Anger with gratitude.

All this will be done with the Turquoise carpet being rolled out to this family so that they can feel the privilege of being taken care of and relate that back to the privilege they have to care for this new family member.

Rare diseases are only rare when you consider the actual disease. They come in many forms. Parents will set up private charities and fundraising events for their unique disease. MOH is set up to galvanize these smaller charities to come together to make a huge impact for all rare diseases. It starts with you. Your donation enables us to continue to expand our network, our reach, and our mission.

THANK YOU. THANK YOU. THANK YOU.